I do not know whether anybody will get to read my blog. But here goes. today started out as any other day starts. No that it's not exactly true. Today is Monday. Monday, Wednesday, Friday are tummy days. So, last night I took what ever I needed to get my tummy to work on Monday morning. My nurse comes in on Monday, puts in my sepository to really get to the tummy going. She helps me onto my commode, which has wheels and then I am wheeled to the toilet.
So how do I feel about this? I have grown used to it I suppose. I just hate my lack of independence. Not being able to go to bed when I like (I can no longer get onto the bed on my own). But then I cannot get up on my own any more.I can tell you the truth. I find this so very frustrating. I am not going to make any joke about it. It hurts me more than I can express. I am no longer the master of my day.I need help for the most fundamental works of life. I am eternally grateful that I had been given the assistance so that the natural jobs are taken care of.
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this year marks my 30th year living with the monstrous beast or multiple sclerosis. I first got it when I was 16 years old and it has done its best to mess up my life. Well it hasn't, entirely! My blog will be all about coping, living with the frustration. Perhaps it will be a place to find friends, vent your feelings.
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